Hear stories about patients with primary immunodeficiency diseases who have had adverse reactions as a result of switching immunoglobulin replacement therapy.
Three years ago Donna Marie was diagnosed with immunoglobulin A deficiency (IgAD)—a rare primary immunodeficiency disease (PIDD). Immediately following her diagnosis, Donna Marie began an intravenous immune globulin replacement (IVIG) therapy to treat her disease. Read Donna Marie’s story
Jeremy Werner has been very sick his entire life. After spending his adolescence filled with tests and doctors appointments, Jeremy was finally diagnosed with hypogammaglobulinemia—a rare primary immunodeficiency disease (PIDD)—at the age of 18-years-old. Read Jeremy’s story
As a mother of three children, Michelle Fox wants what any mother wants—to make sure her children are safe and happy. All three of Michelle’s children are on immunoglobulin replacement (Ig) therapy to treat their primary immunodeficiency diseases (PIDD), and she worries about them everyday. Read Michelle’s story
Frank Meuers regularly received immunoglobulin replacement therapy for his primary immunodeficiency disease. He usually had no adverse reactions, and went about his days feeling good. But one day after he left treatment, he began experiencing debilitating headaches that sent his body into a minor shock. Frank experienced cold chills, feverish symptoms, and very painful muscle stiffness. It was a level of pain he had never known before. Read Frank’s story
After seeing countless doctors for more than thirty years, Betty Gordon was finally diagnosed with common variable immunodeficiency (CVID)—a rare primary immunodeficiency disease (PIDD)—at the age of 57. Read Betty’s story
When Ellen Magg’s was 60, she began receiving an intravenous immunoglobulin replacement (IVIG) therapy after being diagnosed with common variable immunodeficiency (CVID) several years earlier. She received her treatments at the hospital’s infusion clinic and became stabilized on a therapy that did not cause her to have adverse reactions. On several occasions, hospital nurses tried substituting Ellen’s therapy with another. Read Ellen’s story
Watch Melanie’s Story
Watch Lisa’s Story
Watch Patient Stories about Adverse Reactions as a Result of Switching Ig Products
Watch Colin’s Story
If you are a Coventry beneficiary having issues accessing your non-preferred IVIG product, or you are a patient who has experienced an adverse reaction as a result of trying a new product please let us know by sending an email to IDF through the CONTACT button at the top of the page.